Somewhere lost in time

Despite the state of my mind, heart and soul my Behcets symptoms are doing okay. I can't go into what has happened over the last couple months too much right now. For no other reason then I'm just not able to put the experience to words yet, besides only this Nutcase in this Nutshell should have to carry the burden. But I'm here, broken and lost in time. It's June and apparently May wasn't worthy of a blog, actually May wasn't worthy of much.

One year and counting

I went to my one year Pulmonary Function Test and my lungs haven't changed since my 6 month appointment. I suppose that's good news. I seem to be okay on the 100mgs of Imuran. I've had a few oral ulcers since I changed the dose. My girls and I are adjusting to our new home and life. I'm still not sure what I'm going to do about my health insurance after July. I'm supposed to have another PFT in October and I'm wondering if my cheapest bet would be to head to Canada for it and pay cash. I still have some time to think about it. Everyone keeps asking why I can't stay on my ex-husbands insurance, apparently people do it all the time. He's not too interested in entertaining the idea for longer then it takes him to say "NO". Everyone also keeps asking me if I'll ever get married again, at this point my answer is "yea, for health insurance".

Day 357 I'm running

I started a new job. I'm moving myself and my daughters into an apartment this weekend. I signed divorce papers last week. I have my 1 year pulmonary function test next week. I won't have health insurance after June. I started taking 100mg's of Imuran a day in order to be able to bank enough meds so that I can hopefully complete the two year treatment. I just want to close this chapter of my life. I'm running. Yes, I am. Either run and be free from the stress that was my married life or stay and see just how sick I can get.

Day 304 A Good Scolding

Went and saw my Rheumie today for a follow up and meds check. He wasn't very happy that I've missed my last 2 blood draws. I should have had blood drawn in December and then again last week. I just keep forgetting! I stopped taking my Imuran earlier this week in order to allow the antibiotics for my bladder infection to work and also so my body can help fight the infection. Today is my first day back on it. The stress in my life is like none before and it will be a true test for my disease. I know the stress will pass and I just need to keep my eyes on the horizon.

Day 301..Batting zero

Hello everyone. Damn, life truly has a funny way of throwing curve balls at you. I'm a living testament to that. I don't think I'll be coming off the Imuran in April to get pregnant. I'm not really sure how much longer I'll be able to take it. Nor am I sure if I'll even have health insurance come April.

Aloha!

Not too much to report on my health. Still on the 150mgs of Imuran per day but I'm stopping it in April for pregnancy. It's decided and I'm super happy about it. Need to go see my Rheumie but first I'm going to enjoy this week in Hawaii and the family we're visiting.