Since my last post I have visited a podiatrist twice, cortisone injection and completed a 6 day #MethylPREDNISolone treatment. I had the prescription for a week before I decided to take, the shit is just plain nasty! It took me crawling to the bathroom in the middle of the night and having my mother bring me my grandmothers old wheelchair so I could get out of bed in the morning. I haven't worked in over 3 weeks, I'm depressed, angry and scared. The first podiatrist apt was typical of many Behcets patients visiting a specialist for the first time, I was his first. I received an informal diagnosis of Raynauds with a follow up in 1 week. The prednisone helped immensely but it was short lived. I've been off the taper for 4 days and its regressing back. It's in my feet, hands and left hip. The pain can be astonishing. Literally day to day, good days and bad days. At the second appointment not surprised to hear the Podiatrist retract his diagnosis (I'm guessing he did some homework) and contributing it to the Behcets (no follow up with him needed). Couple things said were "I'm sorry, I just didn't realize the severity of the disease" "Honestly I don't remember even covering this in medical school" and "you may just be a good candidate for a pain clinic". Hmmmm...okay, thanks and goodbye.
Rheumie appointment the following week was a success. I guess. Never fun when you have to go see the doctor that you only go see when something is wrong. But I have agreed to do a 30 day prednisone treatment while we wait for the Sulfasalazine to kick in and work. This blog was tough for me to get out. I should and will post more specifics later but for right now I'm done.
PS. Happy notes, I ordered a juicer and I'm excited about it. And I'm supposed to start classes in 2 weeks...scary!I forgot the best news of all! I was able to see my old Rheumie!! Didn't have to be auctioned off, but I did have to change insurance plans. :)
Thursday, March 14, 2013
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